Showing posts with label good friends. Show all posts
Showing posts with label good friends. Show all posts

Thursday, November 27, 2014

Giving Thanks



I offer thanks today for all the good I have in my life.  

I am so grateful to God for putting in my path so many wonderful people who are so good to me.  My caretakers who provide me with help so that I can stay home as long as possible.   My doctors who work so hard to keep my complicated health issues organized and who do it with warmth and compassion.  Professionals who have helped me with business issues, without judgment or criticism.
 
But most of all I am thankful for those of you who are so good to me on an everyday basis.   Those of you who offer me empathy and encouragement and unconditional love, you are what keep me going.  You all keep me from folding under the weight of everything I have lost and make me appreciate everything I still have. 
 
That is my Thanks Giving.


 



Words my loved ones live by:

1 Corinthians 13

Love

13 1 What if I could speak all languages of humans
 and of angels?
If I did not love others, I would be nothing more
than a noisy gong or a clanging cymbal.
What if I could prophesy and understand all secrets
 and all knowledge?
And what if I had faith that moved mountains?
I would be nothing, unless I loved others.
What if I gave away all that I owned
and let myself be burned alive?
I would gain nothing, unless I loved others.
Love is kind and patient, never jealous, boastful,
 proud, or rude.
Love isn’t selfish or quick tempered.
It doesn’t keep a record of wrongs that others do.
Love rejoices in the truth, but not in evil.
Love is always supportive, loyal, hopeful,
 and trusting.
Love never fails!  Everyone who prophesies will stop,
and unknown languages will no longer  be spoken.
All that we know will be forgotten.
We don’t know everything, and our prophecies
are not complete. 10 But what is perfect will someday appear,
and what isn’t perfect will then disappear.
11 When we were children, we thought and reasoned
 as children do. But when we grew up, we quit our childish ways.
12 Now all we can see of God is like a cloudy picture
in a mirror. Later we will see him face to face.
We don’t know everything, but then we will,
just as God completely understands us.
13 For now there are faith, hope, and love.
But of these three, the greatest is love.

  
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Thursday, November 28, 2013

Thanksgiving 2013

If I allow myself, I can have a splendid wallow in the muck of all the tough things I am dealing with.  MS.  Stage 4 cancer.  Severely diminished financial status.  Worst of all, most painful of all, estrangement from people that I love.  People I will always love and miss terribly.

There is a big however, however.  (giggle)  I am surrounded by an incredible, amazing, brilliant aura of love and support that is indefatigable.   This network includes childhood friends from growing up in the Bronx. My beloved cousin Steve, a stable, affectionate presence since I was born.  Classmates ranging from grade school to grad school.   Friends from my days as a young mother and La Leche League leader.  Friends from a lifetime of jobs, notably B. Dalton Books, The Asbury Park Press, teaching childbirth classes at Jersey Shore Medical Center, Healthnet.  Friendships that grew through our children’s friendships.  Friends from church.  Friends who used to be neighbors.   Friends I met through other friends.  Fellow writers.  These are true friends, not acquaintances.  These are people who have cried with me and for me, joined in prayer with me, laughed with me, shared their love and lives and individual gifts with me.  Most importantly, these are people who have never let me forget I am loved.  They bring light and joy to me as effortlessly as you would take a breath.  And when I express amazement and gratitude at their friendship, they express amazement that I am surprised.  It is a funny, continuous circle of “You love me?!?!  But why?!?  You are the one who is wonderful.  No, you are the one who is wonderful!  No, you are the one who is wonderful!”  And on and on.

Make no mistake, I have many, many low moments.  I am no Pollyanna.  Constant pain is overwhelming and can obliterate all sensible thought.  Fear of the unknown, of the future, or of the lack of a future, sneaks up on me, leaving me breathless and sick to my stomach.   Thinking of the losses I’ve experienced can make me bitter and full of self pity.  Animosity from people I love has been astonishing and heartbreaking.  There are many desperately down times and I have to struggle awfully hard to rise up.  Some days I barely make it.  But awareness of the incredible affection and sincerity of the dear ones around me holds me up, keeping me from sinking completely.  I know it sounds corny, and the phrase has been in more than a few song lyrics, but they give me the strength to keep going when there is so much threatening to drag me down.   

It is the dedication of all these remarkable people that gives me the capacity to say I have SO much to be thankful for.  Because I truly do.  I hope all of you reading this have as much to be grateful for as I do.

Happy Thanksgiving!! 



1 Corinthians 13:8



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Thursday, June 13, 2013

Bronx Reflections: Cherished Childhood Friends

I have always been sentimental, I take after my grandmother, but I find I have become even more so since I have been sick.  I have been thinking a lot about growing up in the Bronx and also in Manhattan, where my grandparents lived and where I spent so, so much time. The city was an ideal place for a child like me, independent and curious.  There was always something to do and, luckily for me, there was usually someone to do it with. 

Two of my childhood cohorts, Hank and Mary, are easily my oldest friends, going back well over 55 years.  It is amazing how an accident of geography placed us together and yet we were such a perfect fit.   Mary was one of only a handful of children who lived in our large apartment building, but we were made for each other, both of us mad for animals, horses especially, and yet content to spend an afternoon reading side by side or playing paper dolls, even if the weather outside was fine. She lived on the top floor, I lived on the ground floor.  I was sturdy and tough, she was tiny and delicate and we were inseparable. 

Hank’s aunt lived in the building next door and every summer he was sent to stay with her.  He, with his chipmunk cheeks and adorable, mischievous dimple (which he still has), arrived in late spring and left in the fall, but oh the fun we squeezed in for those few weeks every year!   

 We all romped, first, directly in front of our respective apartment buildings.  Then, as we got older, we branched out to frolicking around the entire block and into the wilds of the space in the center of that block, behind the buildings.  We called it the Back Lot and I have to laugh at how barbarous and rough that sounds, because this was a lovely, middle class neighborhood.  It makes us sound like grubby, neglected urchins, when we truly were closely supervised and strictly raised.  But children love leafy, mysterious places and that is what the Back Lot was.  It was filled with boulders, ailanthus trees and weedy shrubs, shot through with rocky paths, shortcuts through the block from one street to another.  A perfect setting for all sorts of adventures.  When I think of the kind of misadventures we could have encountered I shudder.  But we never did.  It was our own personal playground.  The park was off limits for us at that time, too far for us to go alone (although I, defiant and fearless, frequently sneaked down to the park that bordered the Harlem River, often dragging my hapless brother along).  The Back Lot suited us just fine for the most part.



(All the greenery in the middle is our "Back Lot", the wilds of University Heights.  The yellow line is the route I took every day from my front door to school.)

There were actually four of us, not just three.  Our dear Noel rounded out our particularly close quartet.  He was in my class at Holy Spirit.  He was quiet, smart and made funny faces that made me laugh.  I adored him.  We adored him.  It is one of my life’s great sorrows that none of us have seen or heard from him in over forty years.  We have searched online and found no trace.  There have been tantalizing clues here and there, including the possibility he entered the priesthood, but otherwise there is nothing.  His full name is relatively common in England, where he was born, and in Ireland, so that complicates things.  We miss him terribly.

One of our favorite games was acting out scenarios based on 1950’s TV shows, especially the Superman TV series. (We watched A LOT of television!)  It is so funny to think of now, because both Noel and Hank were sweet and gentle little boys, certainly not aggressive or in any way dominating, but they were our Supermen, taking turns in the role.  And Mary and I would take turns as Lois Lane.  Maybe I am being overly nostalgic, but I don’t remember ever quarreling in our weeks and weeks of playing together every single day.  When the other kids were added to the mix there was inevitably rivalry and, sometimes, tears.  But the four of us always got along on our own.

Both apartment buildings had roomy courtyards ideal for running around in and my building had a vast lobby and great open hall on the first floor that we also took great advantage of.  We always had some fantasy we were acting out, we were a particularly imaginative and creative bunch.  We also were bookish dreamers, which is why I think we were so close.  The other kids on our block were not bad, but they could be bullying and bossy.  The neighborhood at large had a hefty population of Irish Catholics with big families, but, ironically, our side of the block had a very small proportion of children, I can only think of maybe ten all together, including our siblings.  That was it for two large apartment buildings.   

Our building alone was a great big L-shaped that contained probably about 50 apartments.  My side of the L had the address of 106 W. 179 Street and the other side of the L was 1944 Andrews Avenue.  But the majority of tenants were older people, primarily Irish Catholics and Eastern European Jews, and many of the later were Holocaust survivors.  When the 1940 Census was first available online, you could only access people by address, not name.  So I looked up my Bronx address because it was easy to find.  Incredibly, several of the wonderful older people I grew up knowing had lived in the building since 1940, including the couple who lived in the apartment over ours, the Hartmans.  I was so lucky, because these were like an extended family and they were all very, very kind to me.  They really shaped the person I became. 



The 1940 Census shows our upstairs neighbors, Mr. & Mrs. Hartman, were living there 14 years before my parents moved in.  Mrs. Hartman's mother was gone by then and they had no children.  They were very, very nice to me, and I shamelessly dropped by for visits with embarrassing frequency.  They always treated me to cookies and milk.


Mrs. Clune lived upstairs with her little dog, who she walked, it seemed, constantly.  She was a teeny, delicate lady, very sweet, always with a smile.  I have no memory of Mr. Clune, who must have died before I was born.  Their son was probably in his thirties when I knew him, but I thought he was an old man.

But back to us...our idyll only lasted until we were about 12.  My parents moved our family to the wasteland of rural New Jersey in 1966, where there was literally nothing but our hideous, cracker box development and cornfields.  My mother didn’t drive and there was nothing within walking distance, not friends, school, shops or, worst of all, the library.  I don’t think I have ever gotten over it, going from independence and my cherished friends to trapped isolation.

I wish I had pictures of Hank, Mary, Noel and I together, but we don’t.  Almost all the pictures I have of the neighborhood are as it is today.  A few exceptions are snaps of me in my mother’s arms outside our building, but facing the apartment house across the street.  That was a sumptuous complex with gardens, sunken living rooms and multiple bathrooms.  Now it is boarded up.  Although now the neighborhood is more family oriented again, the terrible, crime-ridden days seem to have passed, they left an appalling legacy.  The courtyards where we ran and played our games are locked up, with some gates topped by barbed wire.  The cement steps between the buildings that we used to access the Back Lot have crumbled.  The decorative limestone balustrades that lined the front steps of our apartment building have been demolished and replaced with cinder blocks.  Crime is less, but shabbiness and poverty exist where pride of place ruled before.



The building I grew up in; no gate or barbed wire in my time.  The first two windows to the left were my bedroom.



The other side of the building.  There used to be grass and decorative wrought iron fencing where those concrete slabs are now.


The space between our building and Hank's; the steps are all crumbled and broken now.


The gate enclosing the courtyard of Hank's building.


The beautiful building across the street from ours, the gardens are now all boarded up.

My mother and I took a trip in to see the old neighborhood about 14 years ago, with a friend from the Internet who had gone to my grammar school and his wife.  We had such a nice day exploring, even got to go into Holy Spirit school, as CCD was being taught that day and the school was open.  It was like a time capsule, absolutely immaculate, from the shining wood floors to the bright, windowed classrooms.  It was so good to see, and I am glad I had the chance, as the Dicosese of New York is shutting it down this month.  It is a disgrace that a school which has been in operation for almost 100 years is being closed and the education of inner city children, who are the most vulnerable, is being sacrified.  For shame.

It goes without saying that Hank and Mary grew up to be just as wonderful as they were when they were kids.  Mary is a devoted mother of a large extended family.  She still has a big, sensitive heart and a special love for animals.  Hank is a loving, loyal friend and he works hard to make a difference in this world (here is a link to his website).  Life and geographical distance prevent us from seeing each other as we would like, but, especially since I have been sick, they never fail to remind me how important I am to them and how I am in their thoughts and prayers.  One cannot ask for much more than that.

I am so grateful for how my sweet friends enriched my life and I thank you all, Hank, Mary and Noel.  I believe somewhere in the universe there is a faint echo of the laughter and pure delight in life that four children shared together a long time ago.  There is no way that joy, that simple pleasure in each other’s company, could ever fade away.

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Sunday, May 19, 2013

Back in the Hospital (I could not think of a catchy title)

I started feeling crummy last week, with a pain in my side and no appetite.  I slowly got worse until finally the pain was so bad it was making me sick.  When Nicole, my home health aide, arrived on Thursday, she took one look at me and said “I am taking you to the ER.”

When we got there she peeled up and parked all crooked, as though I were a trauma victim bleeding to death.  We hadn’t brought my wheelchair because we figured there would be one at the ER.  But there wasn’t.  So my sweet Nicole, who takes such good care of me, had a Terms-of-Endearment-Shirley-Maclaine melt down, yelling “What kind of hospital doesn’t have wheelchairs?!?!”

Well they dug one up, registered me, realized I was a minor VIP (past director in the system and daughter and son-in-law both still working for the hospital) and the testing began.  They diagnosed exactly what I knew it was.

An inflamed gall bladder.  Cholecystitis.  Mundane, middle aged, ordinary.  Embarrassingly banal.  Minor surgery, admitted in the morning, home by evening.

Unless you have MS, lymphedema and a partially paralyzed diaphragm.  Then it is a medical emergency, a crisis that requires consults with a cast of thousands:  anesthesiologists, surgeons, pulmonologists and, I swear, passers-by on the street.  The consensus: the surgery to remove the gall bladder is simply too risky.  I was facing days in the ICU, prolonged intubation and a possible tracheotomy (an opening cut into my throat into which a tube would be inserted).  Not to mention a slow and horrifying death.

So now the plan is to do a less invasive procedure that will hopefully quiet down the gall bladder, prevent it from getting gangrenous and buy some time to figure out some more options.

In the meantime, a mass has been found on my liver.  Because all the other stuff was not enough.  So I had an MRI for that yesterday.  I had to leave the hospital because they had to use a special machine.  When the EMT’s arrived to transport me, the first guy took one look at me and, at the top of his voice, announced “No way is she going fit on our stretcher”.  I could feel my face get hot, I was so mortified.  The nurse and aide gasped.  Even his partner looked uncomfortable.  Trying to maintain some shred of dignity I told them I never had a problem “fitting” on a gurney before. How about I just try it?  He ignored me, went into the hall to call his dispatch and loudly asked how long it would take to get a bariatric stretcher.  Four hours.  I would not make my appointment.  But I knew I didn’t need it, that I would be ok on a regular gurney.  Finally he reluctantly agreed to let me try, all the while muttering dire warnings about hideous discomfort to my fat, fat, fat body.  And guess what?  I fit, as I knew I would, with room to spare, and was completely comfortable.

This guy is now my candidate for The Asshole Hall of Fame.

On the plus side, when I got to the MRI center, the tech was my old friend Nicky, who has been doing my MRI’s since I first got sick in 2005.  He is the most incredibly kind man.  After one MRI a few years ago, when I was in tears from so much pain, he actually got down on his knees, put on my socks and sneakers and tied them for me.    I had forgotten he told me he moonlighted at this place.  His sweet demeanor and constant concern for my comfort was a real gift.

Then when I got back to the hospital, the staff had a surprise for me.  They had been so upset over how the EMT had treated me, they moved me to a private room and presented it with a big “TA DA!!” like a Christmas present.  They are the best.  So, so kind.  It makes a huge difference.

My friends on Facebook have also overwhelmed me with their love and caring.  Message after message of support, encouragement, prayers and reassurance are like lifelines.  I am so lucky.

So now I am just hanging out, day four in the hospital, waiting for the results of the MRI to diagnose what is going on with my liver.  Tomorrow I should have the minor procedure.  My pain level is pretty high, so I am existing from shot to shot.  One doctor was just in and asked how I was doing.  I said my pain level was up there and the medicine just wasn’t helping as much anymore.  He didn’t respond, but asked a few more questions and then said, ok, glad you are doing well see you tomorrow.  Um, what about my pain? I ask.  Oh…well, make sure you ask for your medicine when it is due.  Smile.  Bye.

Sigh.


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Tuesday, September 21, 2010

It WAS My Birthday!

Completely forgot my e-mail subscribers can't see embedded videos!! Sorry about that! So here is a do-over, because this is an awesome version of The Birthday Song:

http://www.youtube.com/watch?v=MjF1bG5LUcs

Just look at those people!! Can you even imagine so many coming out just to see you!?! I wonder if you ever get used to it?

And here is the embedded version, in case you missed that:



I had a super birthday, thanks to my children and my amazing, generous, loving friends. My daughter brought me breakfast and we sat in bed watching the Today Show and generally laughing at everything. I received good wish after good wish all day long, on the phone, in the mail, in person and on Facebook. And tonight had dinner with half the kids, their Significant Others (who I love) and my beloved grandson, who is a total character. He sat next to me and gallantly picked up my napkin every time I dropped it, which was pretty often due to lack of feeling in my hands. Finally he said, very seriously, "If you drop it again, I'm not picking it up." Alrighty then.

Thank you all so, so much!!

_______________________

Last chance for a Giveaway on my Bookworm page, The Shore Bookworm. Leave a comment by midnight Eastern Time tonight for a chance to win "Past Caring" by Robert Goddard. While you're at it, sign up to get The Shore Bookworm delivered to directly to you. I am doing reviews and recommendations of great books, old and new, children's books and adult's books and generally commenting on the magic of reading. Come join the fun!

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Sunday, February 28, 2010

Muddy Waters

I live in a wonderful old house, built approximately in 1930.

Everyone loves it, it is charming and rambling and sunny and welcoming. I adore it, every unique, Craftsman architectural detail. But holy mackerel, is it ever a lot of work. Eighty year old things just are constantly breaking, falling off, falling down or simply sagging. But I figure it just goes with owning an older home.

For example, about once a year I have to have roots snaked out of my sewer line. I feel as though it is a small place to pay for my gorgeous maple, but it is a pain.

In January I used a new plumbing company we’ll call the Incompetent Wankers. The Incompetent Wanker who did the job January 27 left a receipt stating he had pulled out “a lot of roots” (so articulate) and added the promising note “30 day warranty”.

I love a Wanker who can stand behind his work.

However they also charged twice as much as I had ever paid, so I decided not to use them again.

At any rate, four days ago water began to accumulate in my basement. What do I know about plumbing? I assumed my sump pump was broken. The water rose and rose. I called several plumbers who said it sounded like too big a job for them. My friend Peter came over to assess the situation. By now there was a foot of water and my boiler and hot water heater were out.

He found that the sewer pipe that had been snaked just three weeks earlier was completely, totally blocked. And, he added, it was absolutely because the job had not been done properly. He (a repairman) said he would do it, but I had paid them so much money and it was their responsibility, they really needed to come and fix everything.

I called the Incompetent Wankers and they, with ill grace, sent out someone to snake it out again. Sure enough, once that was done the water was gone over night, leaving God awful mess. But I was still without heat because there had been too much water for anyone to repair the boiler before.

I had hunkered down by my fireplace, just putting on log after log to keep warm. Barely warm. There was a blizzard roaring outside.

Friday morning, with the water gone, I called the Incompetent Wankers to come relight my boiler. They sent two guys who walked in my house with a major attitude and it was all downhill after that.

I was, as I always am, nice when they arrived. One of these guys had been the one snaking the pipe the night before and he had to wade through the foot of icy sewer water (although why a plumber answering a call to a flooded basement didn't have waders on I will never know). While he was down there I was standing at the top of the stairs wringing my hands in absolute agony for him. I offered him tea, towels, clean things to change into (which I didn't have but I would have crossed that bridge when I came to it). He knew I was a nice normal person and he acted like one too.

But once his fellow goon got started on Friday, he joined right in. You know, I think that was one of the most upsetting parts of the whole experience.

The other guy started by accusing me of neglecting my sewer system and stated the flood was my fault. He was actually yelling at me. Now I am 5’3” tall, I’m a widow who lives by myself and I have Multiple Sclerosis, so I walk with a cane or walker. I’m not a threatening person. This guy was so unbelievably rude I finally said to him “Don’t you dare speak to me like that.” His response? “Fuck you lady. You want us to fix your boiler then don’t you talk to ME like that.”

Remember I said it was all downhill after that? Well now it sped downhill faster than an Olympic skier.

“Get out you! Just get out. Your co-worker can do the work but I want you out of my house!”

He laughed in my face. “$199 to fix the furnace.” I said “Absolutely not, you people caused this damage and I am not paying you anything.” “Ok, we’re outta here.” He declared, punctuating his statement with “You crazy bitch.”  (An aside: It has occurred to me that I should have kept my mouth shut, let them fix it and then just put a stop payment on the check and advise them why.  But then I wouldn't have had the rest of this entertaining post!!)

By this time I actually had chest pain and was weeping. I was SO cold!!!  They slammed the storm door as they left and I absolutely snapped. I raced (yes folks, raced, me who can barely walk; it is amazing what adrenaline can do) ahead of them in the snow wearing no coat and with nothing but slippers on my feet.  Well, I had clothes on too.  But there was no way I was going to let them go without fixing my boiler.

So…I planted myself in front of their truck and said, through hiccupping sobs, I wasn’t budging until my boiler was fixed.

Crazy bitch? They had no idea what a crazy bitch even was until they pushed me over the edge.

They called the owner on their phones. I called the owner on my phone. Now I have to interject these people have trucks with huge smiley faces on them. Their motto is “Same day service with a smile”. When I spoke with the owner I anticipated some level of customer service.

His response to me: he called me crazy too. And an ‘abnormal person’. OK, granted, I was sitting on the bumper of one of his trucks crying hysterically. I called my son and he raced over. He was conciliatory, trying to work things out, but they gave him the same attitude. They threatened to call the police. I offered to call for them. The owner on the phone, his voice dripping with venom, said “I am going to report you to the health department for unsafe living conditions [that they had caused]. With my connections I am going to fix it so you will be paying fines until you are 100 years old.” I was speechless.

I knew I couldn’t bear being cold for one more minute. I also knew I would not be able to find another plumber that day with the snowstorm. So I folded. I said “Whatever, I’ll pay, just fix my boiler.” But now they said I had to pay cash. And it would be $600. Six hundred dollars in cash. Which I didn’t have.

They had won. I got off the truck and leaned against my fence, crying in the snow. My son once again tried to reason with them, but the Incompetent Wankers took off, driving so fast they fishtailed as they rounded the corner.

My wonderful son put his arms around me and I just cried and cried. Because on top of everything, I was laid off on Thursday. This was all too much.

My phone rang at that point and it was my friend Peter again. I told him what had happened. He said he would be over in ten minutes and he would fix my boiler.

And he did. With a part the cost less than $50.

For a giggle, in honor of my son’s bravery and support:



E-mail readers:

http://www.youtube.com/watch?v=2V0a81GdyUA


And Now I’m Unemployed




I know that organizations are simply panting to hire 55 year old women with Multiple Sclerosis, so I’m sure I will be fine. I base that on the fact the last time I was laid off I was out of work for ten months and almost lost my house and my mind. I’m really looking forward to reliving that experience.

I am trying to not be negative. For example, I still have gas, so I can always stick my head in the oven. See, the power of positive thinking. Massive quantities of vodka and xanax are also extremely comforting.

My friends have rallied around me in a way that truly humbles me. They are absolutely holding me up at a time I cannot do so myself. Through these nightmarish few days my phone has not stopped ringing with offers of moral support and places to stay until I had heat again. My Facebook page has been inundated with messages of encouragement and prayers. My friend Jane (The Witty Ways of A Wayward Wife) actually called me from England to see if I was alright.

I can only ask God to bless them all for their compassion and love.

But I have to warn them not to get too close. I think God hates me and I don’t want them to catch any of His wrath.


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