Friday, September 9, 2011

Family Rules and How Kay Went Away

Family Rules

In my family of origin, being right is all. And everyone is right. It is everyone else who is wrong. Unless you agree with who is right. But you can’t, of course, because you are right, not them.

So be right, but also don’t talk about it. Ok, maybe gloat a little. After all, you are right. But otherwise, mum’s the word.

Got all that?  

How Kay Went Away

After several years of failing health and resources, after more than half a dozen consecutive hospitalizations and crises, my brother and sister arranged last year for my mother to reside in a long term care facility. They had invested time and energy and planning in caring for my parents 24/7 and were frantic about their safety. So this was determined to be best for everyone. The home was brand new, absolutely beautiful and the staff was incredibly caring. My mother despised it. From the second she set foot inside its doors, she campaigned to get out, despite the fact she was receiving impeccable care and was healthier, and safer, than she had been in years. So was my father, who visited her there every single day and was even given his meals there.

Suddenly, down swoops two of her Sisters, my aunts, joining the crusade of a mentally and physically ill woman they each lived more than 200 miles away from and saw maybe twice a year. Let her out, they said. There is nothing wrong with her or your father, they said. They deserve to be together after all these years, they said. The Sisters knew nothing. They knew nothing of the ER visits, the confusion, the middle of the night wanderings, my father’s growing dementia. They knew none of this even though they were told, over and over. They knew nothing of this because they refused to believe it. They declined to believe four competent, cognizant adults who saw my parents nearly every day. My parents were fine, The Sisters KNEW it. We didn’t know what we were talking about.

Thus my mother was discharged home, with The Sisters rabid encouragement, to the care of a man with documented Alzheimer’s Disease. And it was all downhill from there, because my parents were failing and ill-equipped to manage on their own. Did my aunts see how bad things were going? La la la, no no no, I can’t hear you. It took nine long nightmarish months, full of more crises and emergencies and close calls, all handled by my siblings, before my father ended up in a long term care facility himself, desperately ill with congestive heart failure. One Sister then packed up my mother and moved her from New Jersey to Delaware, leaving my father behind. My mother moved hundreds of miles away to her younger sister’s, where she was cosseted and catered to. Which certainly was nice to an extent, but effectively eliminated myself, my siblings, my father and their friends from her life. And my mother was ok with that. After decades of her dramas and illnesses, real and imagined, we were weary. So the general consensus was “You want her? You are welcome to her.” She was in her glory. But she would have a price to pay.

Because of The Sisters’ fantasy world, she wasn’t getting the health care she needed. Weeks went by and she did not see a physician. As she got sicker, The Sisters’ denial kept pace. “She’s fine!” declared my aunt. “Doing great!” Until she ended up in the hospital, also with congestive heart failure. They had finally been dragged onto the See I Told You She Was Sick Express and would not be getting off until she died.

Last month, my mother agreed to an ill-advised surgery. It went poorly. Her condition deteriorated. But it apparently did not occur to The Sisters she should be moved back with her husband. According to them, we, The Miserable Wretches, had thrown in the towel. They had put in their weeks of care and now they, The Heroes, were in charge.

There were times when we not only had no idea what my mother’s condition was but even what hospital she was in. She was like a walnut in a shell game. Finally, with this last discharge, she was sent out with hospice. Not home to my father, but rather back to my aunt’s home in Delaware, which is how she came to die far away from her husband and children. And now a new sideshow to the circus begins, with bitter recriminations – Neglectful Children (their version) vs. Hi-jacking Sisters (our version). And, naturally, we all believe we are right. We all KNOW we are right.

In the quest for Rightness, my mother’s funeral became a battlefield. My father asked me to write her obituary – but it turned out they had already submitted one without even consulting him (and it was inaccurate). Relatives and friends wanted to know what the plans were – The Sisters scheduled the funeral for less than 30 hours after she died, leaving little time for people to adjust schedules. We pleaded with them to postpone it by at least one day, but they (along with my brother, who had apparently decided he now wanted to be a Hero too) wouldn’t budge. Many people were subsequently unable to attend. A brief viewing was planned before the hastily arranged Funeral Mass. My mother had stated over and over through her life she abhorred open caskets and wanted ONLY a closed one. Her casket was open, despite telling The Sisters this. My sister ordered food and told The Sisters she would provide a luncheon at her house afterwards, acting as hostess for my father. The Funeral Director announced to the mourners all were invited back to my sister’s house as my father’s guests. But at the cemetery, without a word, my brother and The Sisters turned their back to her, put my father in a car and drove him away to a restaurant. They had planned that from the beginning, but never told my sister, even when she had graciously invited them back to her home.

Can anyone say “Kay who?”, because honoring my mother became lost in the hostilities.  

After the battle.  No one wins.

Back to the Rules

I have broken the most cardinal of Family Rules by stating these things out loud and, worst of all, telling them to strangers. However, I decided a long time ago that I was living by different rules. And very few of them. Rule number one is be fair and kind as indicated and/or deserved. Rule number two is laugh at myself when needed. Rule number three is don’t worry about any other rules.

On the Relationship Balance Sheet where you would determine People Who Cause Me to Feel Great About Myself and People Who Diminish Me and Cause Me Heartache, I am choosing the first group. I am choosing people who model health and serenity and compassion. I am cheerfully eliminating malice, control and pain.

The punishment for breaking our Family Rules is dire. Rejection and judgment are the consequences when we do not conform. Dissenters are exiled.

The ironic thing is, exile suits me just fine. It’s safer here. And it is, mysteriously, filled with decent and dear friends who are good and kind to me. Go figure.


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Wednesday, September 7, 2011

A Motherless Child



My mother passed away yesterday afternoon, far from where I live, in her sister’s home in Delaware.  Two of her sisters were with her, but none of her children.  Nor her husband.  The reasons are a long story, as complicated and sad as my mother herself.

To say we had a fractious relationship would be an understatement.  Although I have never been a sparrer, just a sponge for wounds and hurt.  My mother, young, beautiful and smart when I was born, had an impossibly deep capacity for both being sad and inflicting sadness.  She was unutterably miserable for most of the time I was growing up, languishing in her bed with crippling depression.  In and out of hospitals during my childhood, her homecomings always meant the same thing – blame, not recovery.  And I was the scapegoat.  

She was first hospitalized when I was about six years old.  When she came home, I was overjoyed.  Until the volley started.  It was, it seemed, my fault she had fallen in the first place.  If I hadn’t been such a bad child, she firmly screamed in my face, she never would have gotten sick.  It was my badness, apparently inherent, that was the source of all her ills.  Her doctor’s were the ones who had told her this.  Get rid of me and her problems would be solved.  Get rid of me or, at a minimum, make me into a good girl.

Of course, not only did her doctor’s never tell her any such thing, but I was a good girl.  Probably the goodest girl on the whole of our city street.  I was a paragon.  And the more she told me how bad I was, the better I strived to be, all the while pleading with her to not be mad at me, promising I would be as good as she needed me to be.

But I was never good enough and she told me so, over and over and over.  For decades.

The Family Tragedy behind all of this actually did involve me.  One June morning when I was four years old, I wandered out of our apartment.  I do not know where she was, but an educated guess is she was in bed, under the covers.  And I, a gregarious child, was beckoned by the other kids playing outside.  In a flash, a piece of glass was thrown and altered the trajectory of my life.  It cost me my right eye.  I vividly remember being comforted by the other children while people went looking for my mother.  Her version of the story was that she was standing right next to me and watched helplessly as the accident unfolded.  Because we Never Talked About the Accident (a Family Rule), I only found out about her fabrication recently.  But I am old enough to realize now, what else was she to do?  Admit to her family, her husband, that she had neglected her child to the point of maiming?  It was an impossible position and she was impossibly tormented by it for the rest of her life.  Unfortunately, I was swept away as well in her river of guilt and shame.  As I grew, there were times I had to stay away from her because of the toxicity, sometimes for years.  It was the only way I could survive.

And now she is gone.

Healing

My mother was such a force of nature, I am simply shocked that she has actually ceased to be.

I am commanding myself to acknowledge how wounded she was.    Our shared, often grievous, history cannot be erased, but it can be understood and forgiven.  I must remember that she was a complex, anguished woman who also was shrewd, funny, smart and quick-witted.  She had been breathtakingly beautiful in her youth.  She was frequently manipulative and selfish but just as often, I think, her heart was in the right place.  She was a brilliant and proud cook.  She was a devoted daughter to my beloved grandparents.  In her later years, she was a model grandma, taking the kids apple picking, playing with them, engaging with them.  Apple picking!  My sister and I still find our jaws dropping when we contemplate it.

In my belief system, she is now healed and whole with God.  She is 
suffering no more, neither physically nor emotionally.  “And God shall wipe away all tears from their eyes; and there shall be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.” Revelation 21:4

I love the idea that she is happy.  It makes me so happy for her.

Mom, may God hold you until the day we meet, happily, again.




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Monday, September 5, 2011

Up On the Roof

After seven years, as many roofers and as many ‘repairs’, the mystery of my leaking roof and subsequent collapsing ceilings has finally been solved.  (An addendum to those who are not familiar with the story: my 'new' roof started leaking within six months of installation.  By that time the roofer had closed up shop AND declared bankruptcy.  No recourse there.  :( ) 

This last roof repair person was just the nicest man, sympathetic and on the ball and thorough. As I said, he took it all in and quickly: peeling plaster, wheelchairs, walkers, canes, me with an IV in my arm. This was, finally, one smart guy. He saw from the get go this was ugly and he knew it was going to get uglier.

The pictures he took told the story. Under the lovely textured Timberline shingles that I paid extra for all those years ago when I was healthy and working and had nowhere to go but up, were thousands of nails. As it should be. Something has to hold those lovely shingles in place. The problem is apparently the person who installed the roof on the entire front of the house and back of the sunroom had his nail gun on the wrong setting. Not only did that person nail down the shingle, but in each and every case, because his gun was set too high, he blew a partial little hole in the shingle as well. That is right. What I have on the front of my house is not so much a roof as swiss cheese. Hundreds and hundreds and hundreds of teeny tiny holes, just like a colander. A colander that has let every drop of rain in for the last seven years. And caused three collapsed ceilings.

But smart and sympathetic doesn’t mean free, does it? I got the estimate in the mail yesterday. Three thousand two hundred dollars. Not counting wood. The entire thing needs to be redone, as there is no practicality in caulking thousands of teeny tiny holes. That would be, actually, impossible.

Even though I knew it was going to be bad, this was still a shock. And moot, as I do not have $3200. Or anything close to it.

So here I am:
• I cannot maintain or afford my home any more.
• I must sell it.
• I cannot sell it with a leaky roof and falling down ceilings.
• I do not have the money to repair the roof.

I have had my back against the wall before and I have either figured out a solution or one has presented itself. I have learned that while things may not work out the way you want, they always do have a way of working out. So now I just have to come up with…something.

In the meantime…

When the Going Gets Tough the Tough Get Quilting 

In my steroid mania and roof distress, I got it into my head that it was past time I learned how to do a log cabin square.  That is the pattern that has log-like strips surrounding a tiny red square, which represents the hearth and fire at the center of a home.  I had always been a little intimidated by the idea of all the pieces and it seemed too complicated, but complicated and distracting fit the bill this week, so I dove in.

Baby steps:



This is the first one I did and I found it wasn’t that hard. I don’t know what I will do with this piece. Maybe make a little pillow?

Then it became an obsession.

I made this wall hanging as a thank you for Christine putting me up during the storm:




I made this bag with hand dyed leftovers from the quilt I made for my new coming grandbaby:




I decided to make a throw for my own bed, doing a quilt-as-you-go method, quilting each square and then sewing them together. I’ll end up with a pre-quilted top and will just have to add a backing and bind it. I already have a whole row done. It seems too easy, I feel as though there is going to be a pitfall somewhere.



I think I have the log cabin thing down.


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Wednesday, August 31, 2011

Hurricanes Everywhere

Public Hurricane

The hurricane blew through the Jersey shore pretty much like a typically bad storm. Nothing compared to the horrors elsewhere in the state and in other places. No power for two days, a pain, but nothing tragic. About a half a foot of water in the basement, but that cleared up as soon as the power kicked on the sump pump. My Infamous Roof leaked, my plaster is peeling in the living room and sunroom ceilings again and I have a call into yet ANOTHER roofer (#7) to figure out where the problem is. Phone service is still out, they said that should be fixed by Friday.

Because of changed plans, it developed I was alone when the storm started to hit Saturday night. After some back and forth, I decided to take my friend Christine up on her offer to stay over with them, mostly for the company. I figured if I stayed home alone I would be both nervous and feeling sorry for myself. So I packed up Bella and my kabillion medications and hightailed it three miles away. Came home Sunday morning, creeping down the street I felt like Scarlett in Gone With the Wind waiting to see if Tara was still standing after the Yankees had been through. Tara was still standing! I said yay, Bella said yay and we settled in to keeping ourselves entertained without power. I had my industrial sized flashlight at the ready (also handy as a potential weapon to brain any villains), my Kindle and lots of tea to sustain me and the electricity came back on Monday morning. All in all not too bad in comparison with others.

My neighbors, the Fuckwits, had the benefit of a generator. Why, one might ask, would a pair of able-bodied, 30-somethings need a generator? Why, to keep their beer cold, why else?!?! The generator was so loud it was like have a jet engine relentlessly blasting in my back yard for over 24 hours. I was ready to pound my head against the wall by the time the power came on.

Personal Hurricane

It started, as it always does, with pain that got worse and worse. And I, as I always do, ignored it. The pain in my leg was like someone had taken it and twisted it as though they were wringing out a mop. And then it puffed up like the Michelin man. And then it got harder and harder to walk. Until, finally, I really could not walk at all, I could only do a crab-like shuffle while gripping furniture and molding for dear life.

After weeks of this building up, it finally occurred to me that I needed a course of IV steroids. Bless his heart, my neurologist ordered it without question. I felt better almost immediately after the first infusion. Of course, because nothing is ever easy, my IV infiltrated overnight. When I flushed it this morning the saline collected in a little puff beneath my skin instead of flowing into my vein. So now I have to have a new IV put in and keep my fingers crossed it will last for one more day.

After three days of IV Solumedrol, I will feel better AND I will be a sleep deprived raving lunatic. What a trade off.

I have my new book to help correct my viewpoint. Unfortunately, I can’t find it because Bella knocked it under my bed (yes, things falling off my bed then fly mysteriously horizontally, so it eventually takes a broom and multiple exclamations of “So THAT’S where that was!!”, to find something that slipped off an hour ago. The book is called Alphatudes and it is all about being grateful for all the shitty things that happen in your life. I mean, accepting with grace that life isn’t perfect. My friends, which is why I adore them, say “PHOOEY!! If there was ever a time to feel sorry for yourself, this is it.” Oh baby, I AM ALL OVER THAT. So I am working a crazed balancing act of self-pity and counting my blessings. It is fun, angst and sanctimony at the same time. It is like having my cake and eating it too.

Breaking News: IV and Roof

The nurse was able to get here this morning and get a good line going. Fingers crossed it lasts until the morning. Second infusion down, mania at Eleven.

The roofer, taking in my falling down ceilings, my power wheelchair, my walker and my IV, was practically in tears and wringing his hands in sorrow after evaluating my roof for about an hour. It will, predictably, cost a fortune to repair. A FORTUNE. A brand new roof that I paid $7000 for just seven years ago and have invested thousands more in fruitless repairs. The original roofers botched the job so badly the whole front has to be ripped off. THE. WHOLE. FRONT. OF. THE. HOUSE. That horrible sound you hear through your window? That’s me, wailing. I think I will be able to stop in a few hours.

Sigh. Alphatudes-shmalfaphatudes, where’s the vodka.

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Thursday, August 25, 2011

Message to My Children

Our family is going through a lot of changes these days. Especially with me being sick and with life being so unpredictable, I was inspired to write a list of lessons I have learned over the years that I would like to impart to them.

Dear Kids,

Things I have learned (often the hard way) and things I want you to know:

• Be kind to yourself. Not indulge yourself, but love yourself the way you deserve to be loved. Don’t be hard on yourself if you make a mistake, just learn from it. Find what you love as your life’s work. You deserve to be happy. Work hard at what you love, but take time to keep balance in your life.

• Be kind to others. Treat them the way you would like to be treated. Smile, hold a door, give someone a ride, let someone in in traffic, overlook it when someone is acting like a jerk. Don’t hold people to impossible standards that they can’t meet, appreciate their humanness. Give back. That kindness will come back to you, over and over. That is how you will be a good example for your own children.

• Don’t let little things bother you. It’s not worth the energy. And if it is a big thing, take a deep breath, walk away, cool off and go back to deal with it when you feel more calm. Things always work out one way or another. Don’t waste your time being angry unless it is over injustice or moral wrong. Anger takes a terrible toll on your soul.

• Be grateful for what you have. Don’t look at other people and think they maybe have it better than you. I guarantee they don’t. There is an old saying: “If you put your troubles in a pile with ten other people, you would take yours back.” You never know what kind of burden someone is carrying. Another good reason to be kind.

• Stay close to your siblings. Work at it. Time goes by so fast. You are the only family you have, cherish that. Enjoy each other. Ignore petty things. Remember what good people you are.

• Tell your children about your family, all the funny and fun stories you can remember. Focus on the good, but don’t ignore the bad. Learn from the bad that people are human and need to be forgiven.

• Have faith in a spiritual power. In hard times, that is where you will find strength and hope.

• Laugh. Look at the funny side of things. Keep a sense of humor.

• Remember that life is very short and you only get one go at it. So make sure if you are investing yourself and your emotions in something that it is worth your while.

• Know that you were always loved, from the minute you were known, before you were even born. You may not have gotten the perfection you deserved, but that overwhelming love was always there. It can give you solace when you need it most, so hold onto it. You will never be alone, that spirit of care and affection is always with you. Nothing can end it, not even death.

In a nutshell:

Love. Laugh. Whine (a little). Nourish yourself. Do these things, you will be happy and you will make the world a better place.

Lots of love,
Mom


My children, 1989  Fireman's Park, Ocean Grove, NJ


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Sunday, August 21, 2011

Summer Days


Summer days with my grandchildren.

Cousins having a fun dinner at The Circus.

Madailein practicing her future occupation of simply looking gorgeous.


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Saturday, August 6, 2011

Pray for Peace

On the anniversary of the bombing of Hiroshima, we owe it to our children to pray for peace, that such a calamity will never be visited on any human beings ever again.

Hiroshima Peace Memorial

I offer prayers for our soldiers all over the world who are fighting against tyranny and evil. I pray for the families of those who will not be coming home.

To lose even a single soldier is overwhelmingly tragic, but I pray their sacrifices will not be tainted by giving in to vengeance. “An eye for an eye makes the whole world blind.” (Mahatma Gandhi)


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