Sunday, July 28, 2013

Not What I Expected

I never, ever thought I would get cancer.  Not in a million years.  But if I did, in my dreams I would be cool and dignified, tragically elegant, wan and heartbreakingly beautiful, facing my fate with courage and decorum.

Snort.  So much for dreams.

In reality, I am a blubbing, hysterical, terrified blob of a mess.  Instead of tissues, I have a roll of paper towels at my bedside to sop up my endless weeping.  The cancer diagnosis is bad enough, but the complications related to MS have me in a panic, mostly because my physicians are in a panic.  Panicky physicians do not inspire a tremendous amount of confidence.

Right now, though, the hardest challenge of all involves my children, who I adore beyond my own life.   For a variety of reasons, some logistical, some personal, at this point in time they cannot be together with me through this.  Of course, we always want what we can’t have and all I want is them.  ALL.  I.  WANT.  IS.  THEM.  My oldest daughter is doing what she can, but, in typical perverse fashion, the situation is too much for her and she alone is not enough for me.  We need to be together as a family.   Their being here would give me the confidence and assurance I need right now.  My courage, my strength, my reason for being, it all comes from them.   I want them here with me, I want to hold their precious hands.  I want their presence, I just want to look at them.  I simply want them.

But even typing those words feels like the most churlish dismissal of what I DO have, which is the most incredible network of support from friends and even people I don’t know.  My friends are the ones who drive me to appointments, listen to me cry, who show up at my back door with frozen drink treats, who tell me everything is going to be all right.  They are the ones who are storming heaven, sending me cards, calling me to tell me they love me.  I do count some family in there, especially my beloved cousin Steve, whose unconditional love has been a constant for my entire life. But for the most part it is friends, acquaintances, friends of friends, virtual friends from our blogs, these are the people who are here for me every minute of the day, radiating caring and hope.

Their campaign of love and optimism is irresistible and I am joining in.  I have never felt worthy before of asking for healing.  But I have been utterly inspired by the confidence that is enveloping me.  I am praying that the cancer has not spread, that the surgery will successfully remove it all, that my care givers will be skilled enough to get me safely through the surgery without needing a vent. 

In January 2004 I teasingly said to my kids “I am turning 50 in September.  I better be getting a pretty darn big party!”  And I did!  My sister and the four of them gave me a wonderful, fun surprise party.  My oldest son delivered a touching toast, stating his pride and love for me.  I was surrounded that day by love and laughter and joy.  It is inexplicable to me that things have gone so terribly wrong. While I am praying for a good outcome and future, more than anything I am praying for my children, that they may also be healed and strengthened and that we can come together as a family once again. 

I listen to meditations written by Belleruth Naparstek, a renowned psychotherapist who was a groundbreaker in the field of guided imagery.  I am focusing on two affirmations in particular to get me through this:

I can feel around me a protective cushion of energy containing all the kindness, good wishes, prayers, gentle smiles, and sweet gestures that have ever been sent my way.


I know that I am held in the hands of God and I am perfectly, utterly safe.

And so I am.


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Webster said...

Those are great affirmations, Marie. When is your surgery scheduled? I want to be thinking of you on that day.

Hopefully, your family will learn what is important and come together more, for themselves and for you.

Tricia Pell said...

It's okay to be blubbering. It's okay to be scared. It's okay to be desperately wanting family. It's wonderful to know you are in God's hands and He alone is in control.

Jane Turley said...

I was thinking about you last night, Marie. Probably about the same time you were writing this post:)

I do believe in the power of prayer. I believe it can heal - but not always in the manner we expect or want for ourselves but in other ways too.

Like your many other friends I will be thinking and praying for you over the the coming weeks in the hope that something good comes out of all your suffering. Keep the faith, Marie. XX

Muffie said...

Marie, I'm so sorry you must go through all of this -- it's heartbreaking. Be assured of my continued prayers.

Anonymous said...

Marie, I have followed your blog for a few years and have been praying for you and yours. I also keep checking here to see how you are. Wishing you peace and comfort. Patricia